Challenges of Parkinson’s Disease

Parkinson’s disease (PD) is the second most common neurodegenerative disorder, impacting an estimated seven to ten million people worldwide. Measuring the symptoms and progress of the disease, and medication effectiveness is currently performed using subjective measures and visual estimation. We developed and evaluated a mobile application, STOP for tracking hand’s motor symptoms, and a medication journal for recording medication intake. We followed 13 PD patients from two countries for a 1-month long real-world deployment. We found that PD patients are willing to use digital tools, such as STOP, to track their medication intake and symptoms, and are also willing to share such data with their caregivers and medical personnel to improve their own care.

Authors:
Kuosmanen Elina, Kan Valerii, Vega Julio, Visuri Aku, Nishiyama Yuuki, Dey Anind K., Harper Simon, Ferreira Denzil

Publication type:
A4 Article in conference proceedings

Place of publication:
Proceedings of the 21st International Conference on Human-Computer Interaction with Mobile Devices and Services (MobileHCI ’19), October 1–4, 2019, Taipei, Taiwan

Keywords:
empirical evaluation, logging, Parkinson’s disease, smartphone

Published:
1 October 2019

Full citation:
Elina Kuosmanen, Valerii Kan, Julio Vega, Aku Visuri, Yuuki Nishiyama, Anind K. Dey, Simon Harper, and Denzil Ferreira. 2019. Challenges of Parkinson’s Disease: User Experiences with STOP. In Proceedings of the 21st International Conference on Human-Computer Interaction with Mobile Devices and Services (MobileHCI ’19). ACM, New York, NY, USA, Article 22, 11 pages. DOI: https://doi.org/10.1145/3338286.3340133

DOI:
https://doi.org/10.1145/3338286.3340133

Read the publication here:
http://urn.fi/urn:nbn:fi-fe2019100932053